Tuesday

Busy busy weekend. We went out to dinner Saturday night with my uncle, Rob and his wife Jeanne who drove over from Jackson, WI which is north of Milwaukee. It was great to see them and Avery just adores them! Plus, Paige and my mom haven't seen them since April, so that was nice too. We went to a nice little Italian restaurant. The food was yummy. I have a funny story to tell but you have to be careful what you say to the girls b/c they may get very embaassed. The girls needed to go to the restroom and it was a small restaurant and there was the 2 of them so I sent them on their own. About 5 minutes later we hear SCREAMING from the bathroom. The whole restaurant heard it and another couple got up and ran over at the same time Greg and I did. I had a vision of something really bad that happened to Avery's surgical site, blood everywhere, large hematoma, something. When we got back there, a woman who worked there opened the door. Both girls were in tears and hysterical because they couldn't get the door open and they thought they were going to be locked in the restroom forever. The door wasn't locked, they just didn't turn it far enuf to get it open. Imagine a clock face, door closed handle at 9 o'clock, to open it, the handle had to got to about 5 o'clock. Big hugs solved all and miraculously, the server brought over pizza dough for them to play with.

Sunday we had breakfast at IHOP and said farewell to Rob and Jeanne. Then, we went the Capital b/c the girls really wanted to see it and go on the tour. After the tour, (Avery adopted the nice gal giving the tour) we went to a restaurant called Ella's Diner. They have a carousel in the warm months but that is closed now. The atmosphere is very kid oriented. After dinner, we took Buggy and Paige to the airport. There were tears and it was hard to say goodbye to the Paigey-poo. Avery fell asleep at 730 that night.

Monday we hung around the house. Greg and I both got a work out in and then we went to Avery's follow up appt with Dr. Siebert. He was running way behind so we waited an hr in the waiting room. But, as luck would have it, a woman came up to us and introduced herself. She asked if Avery had PRS and had the free-flap microvascular surgery.  She told us she had the surgery about 2 years ago. She is 35 years old and noticed changes in her face at age 7 and progression stopped at age 15. I do have to say, she looks pretty darn good! She is having a revision tomorrow with Dr. Siebert. She comes to WI from Israel!  It took us about 1.5 hrs to get all the bolsters and sutures out. There was lots of screaming and negotiating. "Just a minute", "I want to look again", "I want to choose". OMG! I told her that Dr. Siebert was nicer than me as I was ready to papoose her! I should've given her some Ativan! Why didn't I think of that yesterday?!?! She did not however, get the drain out of her back. Still draining too much. So we are still in Madison. I am going to text him the 24hr output tonight at about 6 and he will let us know if she gets it removed Wed or Thurs. Hopefully Wed so we can get back in time for a birthday party on Friday but we'll do whatever he thinks is best.

We went to dinner at a fancy pants restaurant right across from the Capital last night. Avery had her best adult like behavior. We happened to be sitting right next to a few surgeons. Greg and I surmise that they were transplant surgeons, recruiting. They spoke of hearts, livers, kidneys and a transplant service line. I felt like I was at work!!

We plan to go to the Children's museum today and I don't know our plans for tonight. Avery is digging not having all the sutures in and there is no more syrup stuck on the one by her mouth.

Chat later!